JUST FOR LUKE

"Luke is a handsome, pleasant young man who is fit, strong and physically able. ... "     ...more         

PAST 

Born into a happy family, supported to attend kindergarten, primary school and secondary school. Left home at 15 to live in supported accommodation, with  limited access to social, educational, vocational, and recreational opportunities.

Accommodation

Day Program

Recreation

 A HAPPY BLAST from the PAST

Luke was living in NSW - supported by a small group of "friends" from Feb 2010 until June 2012

It started as a dream ...

  • country homestead on 10 acres covered with old gum trees full of birds, surrounded by vast fields of wheat and rice crops
  • beautiful river with sandy beaches, old red gum trees and a vast expansive national park.
  • guest house less than than 100m from the homestead
  • small town full of people who care.

with -

  • Luke, living as a guest in the guest house
  • host family living in the homestead
  • team of people providing support ...

It took a lot of effort, and the good will and generous hearts of a few good people, who weathered the storms that came with the transition, but ... 


... on the road to recovery

We were happy to report that Luke was now living Happy and Well.


... talking to mum on his own mobile phone.

 ... more 

 

 

CURRENT

 Stay in Touch via FACEBOOK - Just for Luke

Luke is being supported by a small group of people to do what's normal for a young man living in the country.  With the right supports in place he is happy - doing the things he loves - walking, cycling, singing, painting ...Luke is living in his own home, closer to home, on a small farm, near Bendigo.

Recent News (Refer Facebook for the latest) - 

  • November 3, 2015 - On this day, 27 years ago - Luke's best friend - Ash Werner was born.  We miss you Ash. Wish you were here.
     
  • October 1, 2015 - Luke gets to stay in his home (Link to story in Bendigo Advertiser)

 

In February 2015 we changed to a new system of supports that relies on professional support for Luke, his family and those who provide Luke with direct support.  We have no staff - only family and friends (some of whom are paid). The fundamentals for what we do come from the MANDT SYSTEM.  

In this place and with these people - I am safe

Disability Support funds from government cover only part of the cost of caring for Luke.  

Over the years Luke's family has forked out many tens of thousands of dollars to top-up the funds coming from DHHS. More recently - changes to workers compensation and other requirements has forced up the cost of basic wages and the need for specialist supports.  A recent appeal to DHHS for an increase in funding to cover  just the basic cost of worker wages was denied.  The family has had to draw down on its own resources to pay worker wages for recent weeks and has decided that it cannot continue to do so.  

DHHS has told the family that it in the process of organising a new place to live, with a new team of support workers, to work within the current budget (which the family believes is impossible) and that it will be ready to move Luke to that location on or before October 1, 2015 we can convince the Victorian Government to give immediate approval of an increase to Luke's ISP (Individualised Support Package).

Even if that was to occur today - the family still faces the challenge of finding money to pay the wages for the next few weeks, or doing all of the supports by themselves, and on their own.

If you would like a donation directly to the bank account that the family uses to supplement the funds provided by DHHS you can use this PAYPAL button to make a donation.

* Clicking on the DONATE button will take you to https:/www.paypal.com - and a donations form showing recipient as MARK MODRA with purpose listed as "Donations - in Trust for Luke" and a reference "D-ITFL"
If you have a
ny questions - please contact us via admin@justforluke.com.

VERY NEAR FUTURE  

HAPPY & SAFE, living in his own home close to home, with friends, participating in life as a much loved and respected member of  his local community. 

  • Something to DO
  • Places to GO
  • Friends

Places to Go -

A holiday by the beach - nice idea - but currently something that is very difficult to organise. We had hoped to do this in November, 2015 but could not raise enough money to make it happen. The trip - which was to be the first trip to the beach in 11 years - was cancelled. Even so, the idea remains - a dream - www.gofundme.com/holidayforluke

Friends - 

 

 

PLANNING TO LIVE WELL is a short presentation on Person Centred Planning - the process of getting from BEING SAD to BEING HAPPY

 

Dr. Livingstone wrote -

Three keys for living happy and well -

  • something to do,
  • someone to love, and
  • something to look forward to.

FINDING RESOURCES

Health Care Planning -   

   Finding a Doctor 
   
Finding a Dentist
   Finding a Counsellor / Psychotherapist

   Developing a Health Plan (DHS forms & templates)
   
Comprehensive Health Assessment Program
   Information for Doctors & Clinic Staff (login)
   Making Decisions about Medical Treatment

Community Access - 

   Finding a place to go
   Planning to have a good time
   Contingency Planning 
      
Information for Police 
      Information for Ambulance  

Supported Accomodation  -

   Practice Manual for Support Workers (DHS)
   "Working Safely in Community Services"

BUILDING SUPPORTS

People - 

People to provide support

Places - 

A place to live - not just a place to sleep

Programs - 

Things to do, and new ways of doing things.

Organization - 

Providing support to the people providing support.

Equipment - 

     Transport -

RV4LUKE is a special vehicle we are building to ensure that Luke gets to travel in comfort and style.  Some are already calling it "Luke's party bus" ... 

Contact Us
Help Us
Join Us

 

 

 MAKING FRIENDS

Happy People Helping People is a story about people from Jay Nolan Community Services in Los Angeles.

Christmas Greeting from Luke  was a silly little video prepared by "Luke's Angels"  - a bunch of girls from IEC who managed to teach him many things in the years 2007 - 2009. Perhaps most significantly, with the use of a "stress thermometer", they helped him understand many of his own moods and feelings, and they taught him to "count to ten" when he was feeling "angry". 

Helpful Tips and Links - 

Information about Autism.

What to do when  "Something is NQR? "

"Not Happy Jan ...!" - tips for anger management.

Positive Behaviour Supports  - An overview from the MANDT SYSTEM

AUTISM: SUPPORTS through the SPECTRUM - One day seminar from MANDT SYSTEM

In the news -

2015

Sep 26 - "Luke gets to stay home" - Bendigo Advertiser

Sep 20 - "Family devastated ..." - Bendigo Advertiser

2014

Sep 04 - "Disability Emergency Accommodation" (reply) - Hansard (search "modra")

Jun 26 - "Disability Emergency Accommodation" (adjournment) - Hansard 

Mar 12 - "New approach for local care" - Bendigo Advertiser

2013

2012

Sep 04 - "Breaking Point" - SBS Insight

Jul 29  - "Saving our Luke" (part1)(part2) -  Sunday Herald Sun

2011

May 10 - "Caring for Luke" -  Light FM 89.9

May 09 - "Sorrow and Joy" -  Light FM 89.9

Apr 24 - "All you need is love - and patience" - Sydney Morning Herald

Feb 28 - "How Love Saved Luke" - Sunday Herald Sun

2010

Jul 04 - "State sued for school 'abuse' of autistic boy" - The Age

Feb 10 - "Parent's Heartbreak ... " - Waverley Leader

2009

Dec 04 - "Disabled Housing in Crisis" - ABC TV

June 21 - "Luke deserves better" - Sunday Herald Sun

2008

Sep 13 - "The Girl Least Likely" - ABC Australian Story

2004

Sep 13 - "Out of Control" - A Current Affair - Channel Nine TV

 Coming Up - 

 

 ...more

 

 

(C) 2009 - 2011 Mark Modra